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Spinal Muscular Atrophy

Rare Diseases
14
Pipeline Programs
21
Companies
42
Clinical Trials
6 recruiting
0
Approved Products

Pipeline by Development Stage

Preclinical
Phase 1
Phase 1/2
Phase 2
Phase 2/3
Phase 3
On Market
0
2
2
4
0
5
1
Early DiscoveryClinical DevelopmentMarket

Drug Modality Breakdown

RNA Therapeutic
1165%
Gene Therapy
318%
Monoclonal Antibody
318%
+ 34 programs with unclassified modality

Rare Diseases is a $21.9B market dominated by a single blockbuster (ELIQUIS), with moderate growth and high consolidation among top-tier pharma players.

$21.9B marketMature→ Stable30 products15 companies

Key Trends

  • Market concentration: One product (ELIQUIS) represents 83% of market spending
  • Complement inhibitors and enzyme replacement therapies gaining momentum
  • Active pipeline with 1,790 trials, predominantly Phase 2-3 stage

Career Verdict

Yes, if you seek stability and commercial opportunity with major pharma; proceed cautiously if you want pipeline upside or innovation-driven roles.

AI-generated market analysis based on FDA, CMS, ClinicalTrials.gov, and hiring data

Market Leaders

#1ELIQUISStable
$18.3B
Bristol Myers Squibb·LAUNCH15.0yr
#2XIFAXANDeclining
$1.1B
Bausch Health·LOE_APPROACHING
#3BRILINTAStable
$692M
AstraZeneca·PEAK10.2yr
#4TYVASO DPIStable
$437M
#5STRENSIQStable
$259M

Drug Class Breakdown

FXa Inhibitors (Anticoagulants)
$18.3B(83%)

Mature, patent-protected until 2041

Unknown Mechanism
$1.4B(6%)

Mixed—includes LOE-approaching products

P2Y12 Receptor Antagonists
$692M(3%)

Peak sales, LOE 2036

Prostaglandins/Vasodilators
$437M(2%)

Stable, long patent protection

Complement Inhibitors
$408M(2%)

Emerging class, no LOE data available

Enzyme Replacement Therapies
$40M(0%)

Niche market, specialized patient populations

Career Outlook

Stable

The rare disease market is stable but mature, with job growth concentrated in commercial and medical affairs rather than R&D innovation. Consolidation among top pharma (AstraZeneca, BMS, Amgen) limits opportunities for mid-tier companies, but specialist biotech firms show hiring momentum. Patent cliff risk for ELIQUIS (2041) will create restructuring opportunities and potential job flux in downstream years.

Breaking In

Target commercial or quality assurance roles at AstraZeneca, Capricor, or Amgen to build market knowledge; rare disease expertise is portable and valued across therapeutic areas.

For Experienced Professionals

Seek regulatory or medical affairs leadership roles where salary ceiling is highest ($243K-$257K); consider biotech firms like Insmed or Krystal for upside if pipeline approvals accelerate.

In-Demand Skills

Market access and HCP engagement (medical affairs)Regulatory and compliance expertisePatient stratification and genetic testing knowledgeCommercial analytics and lifecycle management

Best For

Medical Science Liaison (high salary, growing demand)Commercial Manager/Product Manager (39% of jobs)Regulatory Affairs Specialist (premium salary $257K)Health Economics & Outcomes Research (unmet need in data)

Hiring Landscape

$114K-$257K

Rare disease hiring is concentrated in commercial roles (75 jobs at $215K avg) and medical affairs (16 jobs at $243K avg), reflecting a mature market's focus on market access and HCP engagement. Top hiring companies include AstraZeneca (38 jobs) and emerging biotech players like Capricor Therapeutics (30 jobs). Department salaries range from $114K-$257K, with regulatory affairs commanding premium compensation.

195
Open Roles
5
Companies Hiring
5
Departments

Top Hiring Companies

38Growing
18Stable
17Growing
14Stable

By Department

Commercial(39%)
$215K
Medical Affairs(8%)
$243K
Research & Development(10%)
Regulatory Affairs(4%)
$257K
Quality Assurance(4%)
$168K

Commercial and regulatory roles offer strong salaries and growth; R&D hiring is minimal (10%), reflecting a consolidation and maturity phase in the market.

Competitive Landscape

19 companies ranked by most advanced pipeline stage

Sandoz
SandozAustria - Kundl
6 programs
1
1
3
1
Onasemnogene Abeparvovec-brvePhase 4Gene Therapy1 trial
OAV101Phase 31 trial
OAV101Phase 31 trial
onasemnogene abeparvovec-xioiPhase 3Gene Therapy1 trial
branaplamPhase 1/21 trial
+1 more programs
Active Trials
NCT03381729Terminated32Est. Nov 2021
NCT02268552Completed40Est. Dec 2022
NCT05386680Completed27Est. Nov 2024
+3 more trials
Scholar Rock
Scholar RockMA - Cambridge
5 programs
2
2
ApitegromabPhase 3Monoclonal Antibody1 trial
ApitegromabPhase 3Monoclonal Antibody1 trial
ApitegromabPhase 2Monoclonal Antibody1 trial
SRK-015Phase 21 trial
Optimized rehabilitation programN/A
Active Trials
NCT07047144Recruiting52Est. Mar 2029
NCT03921528Completed58Est. Feb 2024
NCT05626855Active Not Recruiting238Est. May 2029
+1 more trials
Abbott
AbbottABBOTT PARK, IL
3 programs
1
2
Valproic AcidPhase 21 trial
Valproic Acid and LevocarnitinePhase 21 trial
Valproic AcidPhase 11 trial
Active Trials
NCT00374075Completed42Est. Feb 2006
NCT00481013Completed33Est. Nov 2010
NCT00227266Completed94Est. Nov 2007
Human BioSciences
Human BioSciencesWV - Martinsburg
3 programs
1
Sodium phenylbutyratePhase 1/21 trial
Confirmatory TestingN/A
Prospective Evaluation of Infants With Spinal Muscular Atrophy:N/A1 trial
Active Trials
NCT02831296Unknown1,000
NCT00528268Completed22Est. Dec 2013
Biogen
BiogenCAMBRIDGE, MA
15 programs
Konectom NMD ApplicationN/A1 trial
Natural History of Types 2 and 3 SMA in TaiwanN/A1 trial
Patient RegistryN/A1 trial
ThecaFlex DRx SystemN/A1 trial
nusinersenN/ARNA Therapeutic1 trial
+10 more programs
Active Trials
NCT05109637Completed93Est. Jul 2023
NCT03300869Unknown300Est. Dec 2019
NCT04292574Recruiting800Est. May 2025
+17 more trials
Biohaven
BiohavenNEW HAVEN, CT
2 programs
Optimized rehabilitation programN/A1 trial
taldefgrobep alfaPHASE_31 trial
Active Trials
NCT06419322Active Not Recruiting14Est. Dec 2026
NCT05337553Active Not Recruiting269Est. Jun 2026
Genentech
GenentechCA - Oceanside
2 programs
Spinal Cord StimulatorN/A1 trial
RisdiplamPHASE_41 trial
Active Trials
NCT06300996Active Not Recruiting3Est. Sep 2029
NCT05522361Active Not Recruiting10Est. Jun 2026
Roche
RocheSTAVANGER NORWAY, Norway
2 programs
test for SMN1 exon 7 deletionN/A
RisdiplamPHASE_2
Leadiant Biosciences
Leadiant BiosciencesMD - Rockville
2 programs
Valproic AcidPHASE_1
Valproic Acid and LevocarnitinePHASE_2
Novartis
NovartisBASEL, Switzerland
2 programs
branaplamPHASE_1_2
OAV101PHASE_3
Illumina
IlluminaCA - Hayward
1 program
Confirmatory TestingN/A1 trial
Active Trials
NCT03655223Enrolling By Invitation30,000Est. Dec 2025
Merck & Co.
Merck & Co.RAHWAY, NJ
1 program
Confirmatory TestingN/A
GeneDx
GeneDxCT - Stamford
1 program
Confirmatory TestingN/A
Sarepta Therapeutics
1 program
Confirmatory TestingN/A
UNION therapeutics
UNION therapeuticsDenmark - Hellerup
1 program
NusinersenN/ARNA Therapeutic1 trial
Active Trials
NCT05187260Unknown1,000Est. Jan 2024
Genomics
GenomicsUK - Oxford
1 program
Prospective Evaluation of Infants With Spinal Muscular Atrophy:N/A
Utah Medical
Utah MedicalIreland - Dublin
1 program
Prospective Evaluation of Infants With Spinal Muscular Atrophy:N/A
Alcyone Therapeutics
1 program
ThecaFlex DRx SystemN/A
NMD Pharma
NMD PharmaDenmark - Aarhus
1 program
NMD670PHASE_21 trial
Active Trials
NCT05794139Active Not Recruiting54Est. May 2026

Trial Timeline

Clinical trial activity over time

2021
2022
2023
2024
2025
2026
2027
2028
2029
2030
2031
SandozOnasemnogene Abeparvovec-brve
GenentechRisdiplam
BiogenSalanersen
BiogenSalanersen
Scholar RockApitegromab
SandozOAV101
Biohaventaldefgrobep alfa
Scholar RockApitegromab
BiogenNusinersen
SandozOAV101
Sandozonasemnogene abeparvovec-xioi
BiogenNusinersen
BiogenNusinersen
Biogennusinersen
Scholar RockApitegromab

Showing 15 of 42 trials with date data

Clinical Trials (42)

Total enrollment: 171,847 patients across 42 trials

NCT07448610SandozOnasemnogene Abeparvovec-brve

ASsessing The REAl-world Safety & Effectiveness of Spinal Muscular Atrophy Participants Treated With Intrathecal Onasemnogene Abeparvovec-brve (OAV101B) (ITVISMA®): A U.S. Pragmatic Multicenter Study (STREAM)

Start: Jul 2026Est. completion: Jun 203236 patients
Phase 4Not Yet Recruiting

Risdiplam in Patients With Spinal Muscular Atrophy Previously Treated With Nusinersen

Start: Nov 2022Est. completion: Jun 202610 patients
Phase 4Active Not Recruiting

A Study to Learn About Salanersen's (BIIB115) Effects on Movement and Its Safety in Participants Aged 15 to 60 Years With Spinal Muscular Atrophy (SMA) Who Are Either New to SMA Treatment or Were Previously Treated With Risdiplam

Start: Apr 2026Est. completion: Jun 203290 patients
Phase 3Recruiting

A Study to Learn About Salanersen's (BIIB115) Effects on Movement and Its Safety When Given Before Symptoms Appear in Babies With Genetically Diagnosed Spinal Muscular Atrophy (SMA)

Start: Jan 2026Est. completion: May 203230 patients
Phase 3Recruiting

Long-Term Safety & Efficacy of Apitegromab in Patients With SMA Who Completed Previous Trials of Apitegromab

Start: Apr 2023Est. completion: May 2029238 patients
Phase 3Active Not Recruiting

Phase IIIb, Open-label, Multi-center Study to Evaluate Safety, Tolerability and Efficacy of OAV101 Administered Intrathecally to Participants With SMA Who Discontinued Treatment With Nusinersen or Risdiplam

Start: Jan 2023Est. completion: Nov 202427 patients
Phase 3Completed
NCT05337553Biohaventaldefgrobep alfa

A Study to Evaluate the Efficacy and Safety of Taldefgrobep Alfa in Participants With Spinal Muscular Atrophy

Start: Jul 2022Est. completion: Jun 2026269 patients
Phase 3Active Not Recruiting

Efficacy and Safety of Apitegromab in Patients With Later-Onset Spinal Muscular Atrophy Treated With Nusinersen or Risdiplam

Start: Apr 2022Est. completion: Dec 2024188 patients
Phase 3Completed

A Study to Learn About the Effect of Higher Doses of Nusinersen (BIIB058) Given as Injections to Participants With Spinal Muscular Atrophy (SMA) Who Were Previously Treated With Risdiplam (ASCEND)

Start: Jan 2022Est. completion: Jun 202745 patients
Phase 3Active Not Recruiting

Safety and Efficacy of Intravenous OAV101 (AVXS-101) in Pediatric Patients With Spinal Muscular Atrophy (SMA)

Start: Sep 2021Est. completion: Jun 202324 patients
Phase 3Completed
NCT03505099Sandozonasemnogene abeparvovec-xioi

Pre-Symptomatic Study of Intravenous Onasemnogene Abeparvovec-xioi in Spinal Muscular Atrophy (SMA) for Patients With Multiple Copies of SMN2

Start: Apr 2018Est. completion: Jun 202130 patients
Phase 3Completed

A Study for Participants With Spinal Muscular Atrophy (SMA) Who Previously Participated in Nusinersen (ISIS 396443) Investigational Studies

Start: Nov 2015Est. completion: Aug 2023292 patients
Phase 3Completed

A Study to Assess the Efficacy and Safety of Nusinersen (ISIS 396443) in Participants With Later-onset Spinal Muscular Atrophy (SMA)

Start: Nov 2014Est. completion: Feb 2017126 patients
Phase 3Completed

A Study to Assess the Efficacy and Safety of Nusinersen (ISIS 396443) in Infants With Spinal Muscular Atrophy

Start: Aug 2014Est. completion: Nov 2016122 patients
Phase 3Terminated

A Study to Evaluate How Apitegromab Works in Subjects Who Are Less Than 2 Years Old and Have Spinal Muscular Atrophy

Start: Sep 2025Est. completion: Mar 202952 patients
Phase 2Recruiting

Safety and Efficacy of NMD670 in Ambulatory Adult Patients With Type 3 Spinal Muscular Atrophy

Start: Sep 2023Est. completion: May 202654 patients
Phase 2Active Not Recruiting

An Active Treatment Study of SRK-015 in Patients With Type 2 or Type 3 Spinal Muscular Atrophy

Start: Apr 2019Est. completion: Feb 202458 patients
Phase 2Completed

A Study to Assess the Safety and Tolerability of Nusinersen (ISIS 396443) in Participants With Spinal Muscular Atrophy (SMA).

Start: Aug 2015Est. completion: Sep 201821 patients
Phase 2Terminated

A Study of Multiple Doses of Nusinersen (ISIS 396443) Delivered to Infants With Genetically Diagnosed and Presymptomatic Spinal Muscular Atrophy

Start: May 2015Est. completion: Dec 202425 patients
Phase 2Completed

A Study to Assess the Efficacy, Safety and Pharmacokinetics of Nusinersen (ISIS 396443) in Infants With Spinal Muscular Atrophy (SMA)

Start: May 2013Est. completion: Aug 201721 patients
Phase 2Completed
NCT00481013AbbottValproic Acid

Valproic Acid in Ambulant Adults With Spinal Muscular Atrophy

Start: Jul 2007Est. completion: Nov 201033 patients
Phase 2Completed
NCT00227266AbbottValproic Acid and Levocarnitine

Valproic Acid and Carnitine in Patients With Spinal Muscular Atrophy

Start: Sep 2005Est. completion: Nov 200794 patients
Phase 2Completed

An Open Label Study of LMI070 (Branaplam) in Type 1 Spinal Muscular Atrophy (SMA)

Start: Apr 2015Est. completion: Dec 202240 patients
Phase 1/2Completed

An Open-label Safety, Tolerability and Dose-Range Finding Study of Multiple Doses of Nusinersen (ISIS 396443) in Participants With Spinal Muscular Atrophy

Start: Oct 2012Est. completion: Jan 201534 patients
Phase 1/2Completed
NCT00528268Human BioSciencesSodium phenylbutyrate

Study to Evaluate Sodium Phenylbutyrate in Pre-symptomatic Infants With Spinal Muscular Atrophy

Start: Jul 2007Est. completion: Dec 201322 patients
Phase 1/2Completed
NCT03381729SandozOnasemnogene Abeparvovec-xioi

Study of Intrathecal Administration of Onasemnogene Abeparvovec-xioi for Spinal Muscular Atrophy

Start: Dec 2017Est. completion: Nov 202132 patients
Phase 1Terminated

An Open-label Safety and Tolerability Study of Nusinersen (ISIS 396443) in Participants With Spinal Muscular Atrophy (SMA) Who Previously Participated in ISIS 396443-CS2 (NCT01703988) or ISIS 396443-CS10 (NCT01780246)

Start: Jan 2014Est. completion: Jan 201747 patients
Phase 1Completed

An Open-label Safety and Tolerability Study of Nusinersen (ISIS 396443) in Participants With Spinal Muscular Atrophy Who Previously Participated in ISIS 396443-CS1 (NCT01494701)

Start: Jan 2013Est. completion: Feb 201418 patients
Phase 1Completed

An Open-label Safety, Tolerability, and Dose-range Finding Study of Nusinersen (ISIS 396443) in Participants With Spinal Muscular Atrophy (SMA)

Start: Nov 2011Est. completion: Jan 201328 patients
Phase 1Completed
NCT00374075AbbottValproic Acid

Study of Safety and Dosing Effect on SMN Levels of Valproic Acid (VPA) in Patients With Spinal Muscular Atrophy

Start: Sep 2003Est. completion: Feb 200642 patients
Phase 1Completed

Characterizing Perceived Physical Fatigability in Nusinersen-treated SMA

Start: Apr 2025Est. completion: Feb 202745 patients
N/ARecruiting
NCT06419322BiohavenOptimized rehabilitation program

Acceptability, Feasibility, Safety and Efficacy of a Optimized Rehabilitation Program for Treated Patients With Spinal Muscular Atrophy (SMA).

Start: Jun 2024Est. completion: Dec 202614 patients
N/AActive Not Recruiting
NCT06300996GenentechSpinal Cord Stimulator

Spinal Cord Stimulation for the Treatment of Motor Deficits in People With Spinal Muscular Atrophy - Upper Limb

Start: May 2024Est. completion: Sep 20293 patients
N/AActive Not Recruiting
NCT05866419BiogenThecaFlex DRx System

Study of an Intrathecal Port and Catheter System for Subjects With Spinal Muscular Atrophy

Start: Nov 2023Est. completion: Jul 203090 patients
N/ARecruiting
NCT05109637BiogenKonectom NMD Application

A Study to Assess the Clinical Validity of Konectom™ in Adults Living With Neuromuscular Disorders

Start: Feb 2022Est. completion: Jul 202393 patients
N/ACompleted

Antisense Oligonucleotide for Spinal Muscular Atrophy

Start: Jan 2022Est. completion: Jan 20241,000 patients
N/AUnknown
NCT03655223IlluminaConfirmatory Testing

Early Check: Expanded Screening in Newborns

Start: Oct 2018Est. completion: Dec 202530,000 patients
N/AEnrolling By Invitation

Adults With SMA Treated With Nusinersen

Start: Oct 2018Est. completion: Jun 202115 patients
N/ACompleted
NCT03554343Biogentest for SMN1 exon 7 deletion

Sun May Arise on SMA : Newborn Screening of Spinal Muscular Atrophy in Belgium

Start: Mar 2018Est. completion: Feb 2021136,339 patients
N/ACompleted
NCT03300869BiogenNatural History of Types 2 and 3 SMA in Taiwan

Natural History of Types 2 and 3 SMA in Taiwan

Start: Sep 2017Est. completion: Dec 2019300 patients
N/AUnknown
NCT02831296Human BioSciencesProspective Evaluation of Infants With Spinal Muscular Atrophy:

Prospective Evaluation of Infants With Spinal Muscular Atrophy:

Start: Feb 20161,000 patients
N/AUnknown
NCT04292574BiogenPatient Registry

UK SMA Patient Registry

Start: Jul 2008Est. completion: May 2025800 patients
N/ARecruiting

Related Jobs in Rare Diseases

Phase Legend

PreclinicalLab & animal studies
Phase 1Safety & dosing
Phase 2Efficacy testing
Phase 3Large-scale trials
On MarketApproved & available

Key Insights

5 late-stage (Phase 3) programs, potential near-term approvals
6 actively recruiting trials targeting 171,847 patients
21 companies competing in this space

The information on this page is for informational purposes only and should not be used as a substitute for professional medical advice. Drug information is sourced from FDA, DailyMed, and other government databases. Adverse event data from FAERS does not establish causation. Always consult a healthcare professional for medical decisions.