Director, Patient Advocacy

<meta><p dir="ltr" style="font-style:normal;font-weight:400;font-size:11pt;line-height:1.38;font-family:&quot;Basel Grotesk&quot;,Arial,sans-serif;margin-right:0px;padding:0px;margin-top:0px;margin-bottom:0px;"><b><strong style="font-size:18pt;white-space:pre-wrap;">About the role</strong></b></p><p style="font-style:normal;font-weight:400;font-size:12pt;line-height:1.38;font-family:&quot;Basel Grotesk&quot;,Arial,sans-serif;margin-right:0px;padding:0px;margin-top:0px;margin-bottom:0px;"><br></p><p dir="ltr" style="font-style:normal;font-weight:400;font-size:12pt;line-height:1.38;font-family:&quot;Basel Grotesk&quot;,Arial,sans-serif;margin-right:0px;padding:0px;margin-top:0px;margin-bottom:0px;"><span style="font-size:12pt;white-space:pre-wrap;">The Director, Global Patient Advocacy, will work in close collaboration with relevant stakeholders including medical affairs, commercial, regulatory and clinical development to define the company’s patient advocacy priorities and oversee advocacy strategies and collaborations that educate and activate patients.</span></p><p style="font-style:normal;font-weight:400;font-size:12pt;line-height:1.38;font-family:&quot;Basel Grotesk&quot;,Arial,sans-serif;margin-right:0px;padding:0px;margin-top:0px;margin-bottom:0px;"><br></p><p dir="ltr" style="font-style:normal;font-weight:400;font-size:12pt;line-height:1.38;font-family:&quot;Basel Grotesk&quot;,Arial,sans-serif;margin-right:0px;padding:0px;margin-top:0px;margin-bottom:0px;"><span style="font-size:12pt;white-space:pre-wrap;">Direct patient advocacy relationships and interactions across the portfolio disease states including NPC, UCD, and lead advocacy plan execution. Cultivate successful relationships with global patient advocacy organizations and create and execute education and awareness strategies. Serve as an internal subject matter expert on issues relating to patient advocacy. </span><b><strong style="color:rgb(73,73,73);white-space:pre-wrap;">The position is based on-site in Boston, MA</strong></b><span style="color:rgb(73,73,73);white-space:pre-wrap;">.</span></p><p style="font-style:normal;font-weight:400;font-size:11pt;line-height:1.38;font-family:&quot;Basel Grotesk&quot;,Arial,sans-serif;margin-right:0px;padding:0px;margin-top:0px;margin-bottom:0px;"><br></p><p dir="ltr" style="font-style:normal;font-weight:400;font-size:11pt;line-height:1.38;font-family:&quot;Basel Grotesk&quot;,Arial,sans-serif;margin-right:0px;padding:0px;margin-top:0px;margin-bottom:0px;"><b><strong style="font-size:18pt;white-space:pre-wrap;">What you'll do</strong></b></p><ul data-pattern="discCircleSquare" data-depth="1" style="margin:16px 0px;font-style:normal;font-weight:400;font-size:11pt;line-height:1.38;font-family:&quot;Basel Grotesk&quot;,Arial,sans-serif;padding:0px 0px 0px 32px;list-style-type:disc;"><li dir="ltr" style="margin-top:0px;margin-bottom:0px;font-size:12pt;line-height:1.38;"><span style="font-size:12pt;white-space:pre-wrap;">Ensure deep understanding of supported disease areas and patient needs to inform our work across the organization</span></li></ul><ul data-pattern="discCircleSquare" data-depth="1" style="margin:16px 0px;font-style:normal;font-weight:400;font-size:11pt;line-height:1.38;font-family:&quot;Basel Grotesk&quot;,Arial,sans-serif;padding:0px 0px 0px 32px;list-style-type:disc;"><li dir="ltr" style="margin-top:0px;margin-bottom:0px;font-size:12pt;line-height:1.38;"><span style="font-size:12pt;white-space:pre-wrap;">Create and execute a strategic and tactical advocacy plan and corresponding budget</span></li></ul><ul data-pattern="discCircleSquare" data-depth="1" style="margin:16px 0px;font-style:normal;font-weight:400;font-size:11pt;line-height:1.38;font-family:&quot;Basel Grotesk&quot;,Arial,sans-serif;padding:0px 0px 0px 32px;list-style-type:disc;"><li dir="ltr" style="margin-top:0px;margin-bottom:0px;font-size:12pt;line-height:1.38;"><span style="font-size:12pt;white-space:pre-wrap;">Successfully engage rare disease advocates, building trust and long-term relationships</span></li></ul><ul data-pattern="discCircleSquare" data-depth="1" style="margin:16px 0px;font-style:normal;font-weight:400;font-size:11pt;line-height:1.38;font-family:&quot;Basel Grotesk&quot;,Arial,sans-serif;padding:0px 0px 0px 32px;list-style-type:disc;"><li dir="ltr" style="margin-top:0px;margin-bottom:0px;font-size:12pt;line-height:1.38;"><span style="font-size:12pt;white-space:pre-wrap;">Establish and maintain key relationships with advocacy organizations to drive initiatives for collaboration and education. Share information on company activities and interests with advocacy organizations as appropriate</span></li></ul><ul data-pattern="discCircleSquare" data-depth="1" style="margin:16px 0px;font-style:normal;font-weight:400;font-size:11pt;line-height:1.38;font-family:&quot;Basel Grotesk&quot;,Arial,sans-serif;padding:0px 0px 0px 32px;list-style-type:disc;"><li dir="ltr" style="margin-top:0px;margin-bottom:0px;font-size:12pt;line-height:1.38;"><span style="font-size:12pt;white-space:pre-wrap;">Collaborate with key internal teams (marketing, regulatory, market access, clinical and business development, medical affairs, corporate communications) on advocacy issues and support their need for patient engagement and insights</span></li></ul><ul data-pattern="discCircleSquare" data-depth="1" style="margin:16px 0px;font-style:normal;font-weight:400;font-size:11pt;line-height:1.38;font-family:&quot;Basel Grotesk&quot;,Arial,sans-serif;padding:0px 0px 0px 32px;list-style-type:disc;"><li dir="ltr" style="margin-top:0px;margin-bottom:0px;font-size:12pt;line-height:1.38;"><span style="font-size:12pt;white-space:pre-wrap;">Develop and manage the advocacy sponsorship budget and process for patient advocacy grant requests</span></li></ul><ul data-pattern="discCircleSquare" data-depth="1" style="margin:16px 0px;font-style:normal;font-weight:400;font-size:11pt;line-height:1.38;font-family:&quot;Basel Grotesk&quot;,Arial,sans-serif;padding:0px 0px 0px 32px;list-style-type:disc;"><li dir="ltr" style="margin-top:0px;margin-bottom:0px;font-size:12pt;line-height:1.38;"><span style="font-size:12pt;white-space:pre-wrap;">Attend and represent Zevra at key advocacy meetings</span></li></ul><ul data-pattern="discCircleSquare" data-depth="1" style="margin:16px 0px;font-style:normal;font-weight:400;font-size:11pt;line-height:1.38;font-family:&quot;Basel Grotesk&quot;,Arial,sans-serif;padding:0px 0px 0px 32px;list-style-type:disc;"><li dir="ltr" style="margin-top:0px;margin-bottom:0px;font-size:12pt;line-height:1.38;"><span style="font-size:12pt;white-space:pre-wrap;">Identify key strategic company representation and advocacy activities at patient conferences and meetings</span></li></ul><ul data-pattern="discCircleSquare" data-depth="1" style="margin:16px 0px;font-style:normal;font-weight:400;font-size:11pt;line-height:1.38;font-family:&quot;Basel Grotesk&quot;,Arial,sans-serif;padding:0px 0px 0px 32px;list-style-type:disc;"><li dir="ltr" style="margin-top:0px;margin-bottom:0px;font-size:12pt;line-height:1.38;"><span style="font-size:12pt;white-space:pre-wrap;">Build a patient centric culture</span></li></ul><ul data-pattern="discCircleSquare" data-depth="1" style="margin:16px 0px;font-style:normal;font-weight:400;font-size:11pt;line-height:1.38;font-family:&quot;Basel Grotesk&quot;,Arial,sans-serif;padding:0px 0px 0px 32px;list-style-type:disc;"><li dir="ltr" style="margin-top:0px;margin-bottom:0px;font-size:12pt;line-height:1.38;"><span style="font-size:12pt;white-space:pre-wrap;">Work on site Monday - Thursday</span></li></ul><p dir="ltr" style="font-style:normal;font-weight:400;font-size:11pt;line-height:1.38;font-family:&quot;Basel Grotesk&quot;,Arial,sans-serif;margin-right:0px;padding:0px;margin-top:0px;margin-bottom:0px;"><b><strong style="font-size:18pt;white-space:pre-wrap;">Qualifications</strong></b></p><ul data-pattern="discCircleSquare" data-depth="1" style="margin:16px 0px;font-style:normal;font-weight:400;font-size:11pt;line-height:1.38;font-family:&quot;Basel Grotesk&quot;,Arial,sans-serif;padding:0px 0px 0px 32px;list-style-type:disc;"><li dir="ltr" style="margin-top:0px;margin-bottom:0px;font-size:12pt;line-height:1.38;"><span style="font-size:12pt;white-space:pre-wrap;">BS/BA degree in biological sciences, business, marketing or similar field and 10+ years in pharma, biotech industry or patient advocacy</span></li></ul><ul data-pattern="discCircleSquare" data-depth="1" style="margin:16px 0px;font-style:normal;font-weight:400;font-size:11pt;line-height:1.38;font-family:&quot;Basel Grotesk&quot;,Arial,sans-serif;padding:0px 0px 0px 32px;list-style-type:disc;"><li dir="ltr" style="margin-top:0px;margin-bottom:0px;font-size:12pt;line-height:1.38;"><span style="font-size:12pt;white-space:pre-wrap;">An established history experience in patient engagement, advocacy, and/or relations including experience in developing communications and educational resources OR</span></li></ul><ul data-pattern="discCircleSquare" data-depth="1" style="margin:16px 0px;font-style:normal;font-weight:400;font-size:11pt;line-height:1.38;font-family:&quot;Basel Grotesk&quot;,Arial,sans-serif;padding:0px 0px 0px 32px;list-style-type:disc;"><li dir="ltr" style="margin-top:0px;margin-bottom:0px;font-size:12pt;line-height:1.38;"><span style="font-size:12pt;white-space:pre-wrap;">Demonstrated experience implementing organizational strategy with advocacy groups and outcomes</span></li></ul><p dir="ltr" style="font-style:normal;font-weight:400;font-size:11pt;line-height:1.38;font-family:&quot;Basel Grotesk&quot;,Arial,sans-serif;margin-right:0px;padding:0px;margin-top:0px;margin-bottom:0px;"><b><strong style="white-space:pre-wrap;">Equal Employment Opportunity Statement</strong></b></p><p dir="ltr" style="font-style:normal;font-weight:400;font-size:11pt;line-height:1.38;font-family:&quot;Basel Grotesk&quot;,Arial,sans-serif;margin-right:0px;padding:0px;margin-top:0px;margin-bottom:0px;"><span style="white-space:pre-wrap;">Zevra is an equal opportunity employer that is committed to diversity and inclusion in the workplace. We prohibit discrimination and harassment of any kind based on race, color, sex, religion, sexual orientation, national origin, disability, genetic information, pregnancy, or any other protected characteristic as outlined by federal, state, or local laws.</span></p><p style="font-style:normal;font-weight:400;font-size:11pt;line-height:1.38;font-family:&quot;Basel Grotesk&quot;,Arial,sans-serif;margin-right:0px;padding:0px;margin-top:0px;margin-bottom:0px;"><span style="white-space:pre-wrap;">&nbsp;</span></p><p dir="ltr" style="font-style:normal;font-weight:400;font-size:11pt;line-height:1.38;font-family:&quot;Basel Grotesk&quot;,Arial,sans-serif;margin-right:0px;padding:0px;margin-top:0px;margin-bottom:0px;"><b><strong style="white-space:pre-wrap;">Notice to External Recruiters</strong></b><br><span style="white-space:pre-wrap;">Zevra does not accept unsolicited resumes from agencies or search firms. Recruiters are requested not to contact employees or hiring managers. All candidate submissions must be coordinated through our Human Resources team and require a prior written agreement. Any resumes sent without such an agreement will not create any implied obligation.</span></p> <meta><p dir="ltr" style="font-style:normal;font-weight:400;font-size:12pt;line-height:1.38;font-family:&quot;Basel Grotesk&quot;,Arial,sans-serif;margin-right:0px;padding:0px;margin-top:0px;margin-bottom:0px;"><b><strong style="font-size:12pt;white-space:pre-wrap;">About Zevra Therapeutics, Inc.</strong></b><br><br><span style="font-size:12pt;white-space:pre-wrap;">We are a rare disease therapeutics company leading with science to make life-changing therapeutics available to patients with significant unmet needs. We involve key thought leaders, physicians, patients, care partners, and advocacy groups in all of our clinical and regulatory development strategies.</span><br><br><span style="font-size:12pt;white-space:pre-wrap;">With a keen understanding that drug development often requires creative solutions, we have the insight and expertise to forge new pathways to success that others have missed. By following the data without bias, our transparent narratives and common-sense perspective have successfully overcome complex development challenges to make much-needed therapies available to patients.</span><br><br><span style="font-size:12pt;white-space:pre-wrap;">Nimble and dauntless, we push boundaries beyond what is thought to be possible and advance new therapies that have the potential to bring meaningful improvement to patients’ lives.</span></p>