GNE Myopathy

3
Pipeline Programs
2
Companies
3
Clinical Trials
0
Approved Products

Pipeline by Development Stage

Preclinical
Phase 1
Phase 1/2
Phase 2
Phase 2/3
Phase 3
On Market
0
0
0
3
0
0
0
Early DiscoveryClinical DevelopmentMarket

Competitive Landscape

2 companies ranked by most advanced pipeline stage

Ultragenyx Pharmaceutical
2 programs
2
SA-ER 500 mgPhase 21 trial
Sialic Acid Extended ReleasePhase 21 trial
Active Trials
NCT01830972Completed59Est. Feb 2017
NCT01517880Completed46Est. Nov 2013
Leadiant Biosciences
Leadiant BiosciencesMD - Rockville
1 program
1
ManNAcPhase 21 trial
Active Trials
NCT04231266Active Not Recruiting54Est. Oct 2025

Trial Timeline

Clinical trial activity over time

2021
2022
2023
2024
2025
2026
Leadiant BiosciencesManNAc
Ultragenyx PharmaceuticalSA-ER 500 mg
Ultragenyx PharmaceuticalSialic Acid Extended Release

Clinical Trials (3)

Total enrollment: 159 patients across 3 trials

Multi-Center Study of ManNAc for GNE Myopathy

Start: Apr 2022Est. completion: Oct 202554 patients
Phase 2Active Not Recruiting

An Open Label Phase 2 Extension Study of Higher Dose Sialic Acid-Extended Release (SA-ER) Tablets and Sialic Acid-Immediate Release (SA-IR) Capsules in Patients With Glucosamine (UDP-N-acetyl)-2-Epimerase (GNE) Myopathy

Start: Jun 2013Est. completion: Feb 201759 patients
Phase 2Completed
NCT01517880Ultragenyx PharmaceuticalSialic Acid Extended Release

A Phase 2 Study to Evaluate the Dose and Pharmacodynamic Efficacy of Sialic Acid-Extended Release (SA-ER) Tablets in Patients With GNE Myopathy or Hereditary Inclusion Body Myopathy

Start: May 2012Est. completion: Nov 201346 patients
Phase 2Completed

Phase Legend

PreclinicalLab & animal studies
Phase 1Safety & dosing
Phase 2Efficacy testing
Phase 3Large-scale trials
On MarketApproved & available

Key Insights

2 companies competing in this space