Dravet Syndrome (DS)

5
Pipeline Programs
3
Companies
4
Clinical Trials
1 recruiting
2
Approved Products

Pipeline by Development Stage

Preclinical
Phase 1
Phase 1/2
Phase 2
Phase 2/3
Phase 3
On Market
0
0
0
0
0
1
4
Early DiscoveryClinical DevelopmentMarket

Drug Modality Breakdown

Small Molecule
1100%
+ 3 programs with unclassified modality

On Market (2)

Approved therapies currently available

U
FENFLURAMINEApproved
fenfluramine
Unknown Company
oral
UP
FINTEPLAApproved
fenfluramine
UCB Pharma
oral2020

Competitive Landscape

3 companies ranked by most advanced pipeline stage

UP
UCB PharmaBelgium - Brussels
2 programs
1
fenfluraminePhase 41 trial
Byteflies Remote patient monitoring solutionN/A1 trial
Active Trials
NCT07225231Not Yet Recruiting20Est. Dec 2026
NCT06598449Recruiting12Est. Jul 2027
Jazz Pharmaceuticals
Jazz PharmaceuticalsCA - Palo Alto
1 program
1
Epidiolex 100 mg/mL Oral SolutionPhase 41 trial
Active Trials
NCT06924827Not Yet Recruiting25Est. Dec 2028
Takeda
TakedaTOKYO, Japan
1 program
1
SoticlestatPhase 3Small Molecule1 trial
Active Trials
NCT05163314Terminated352Est. Sep 2025

Trial Timeline

Clinical trial activity over time

2022
2023
2024
2025
2026
2027
2028
Jazz PharmaceuticalsEpidiolex 100 mg/mL Oral Solution
UCB Pharmafenfluramine
TakedaSoticlestat
UCB PharmaByteflies Remote patient monitoring solution

Clinical Trials (4)

Total enrollment: 409 patients across 4 trials

NCT06924827Jazz PharmaceuticalsEpidiolex 100 mg/mL Oral Solution

A Study to Investigate the Transition of Children From 'Artisanal" Cannabidiol (CBD) to Epidiolex

Start: Feb 2026Est. completion: Dec 202825 patients
Phase 4Not Yet Recruiting

Assessment of Safety of the Use of Fenfluramine in Children With Dravet Syndrome Under 24 Months of Age

Start: Oct 2024Est. completion: Jul 202712 patients
Phase 4Recruiting

A Study of Soticlestat as an Add-on Therapy in Children and Adults With Dravet Syndrome or Lennox-Gastaut Syndrome

Start: Mar 2022Est. completion: Sep 2025352 patients
Phase 3Terminated
NCT07225231UCB PharmaByteflies Remote patient monitoring solution

Clinical Utility of Reduced EEG Home Monitoring in Fenfluramine Titration for Dravet and LGS

Start: Dec 2025Est. completion: Dec 202620 patients
N/ANot Yet Recruiting

Phase Legend

PreclinicalLab & animal studies
Phase 1Safety & dosing
Phase 2Efficacy testing
Phase 3Large-scale trials
On MarketApproved & available

Key Insights

1 late-stage (Phase 3) programs — potential near-term approvals
1 actively recruiting trials targeting 409 patients
3 companies competing in this space